Healthcare Is Not the Same as Care

Author

Tjörvi E. Perry, MD, MMSc, MBE and Kathleen A. Harder, PhD

Publish date

Healthcare Is Not the Same as Care
Topic(s): Clinical Ethics Health Care

A healthcare system can perform well without always caring, well. Safety, quality, efficiency, and productivity are legitimate goals of healthcare. But achieving them does not necessarily mean that good care has occurred.


Consider a hypothetical patient in an intensive care unit whose health is improving and who has met the hospital’s criteria for transfer to a regular floor. The checklist is complete, a bed has been assigned, and the electronic dashboard marks the patient as ready. The transfer will improve flow through the unit and make a bed available to someone waiting in the emergency department.


At the bedside, however, the patient seems less alert than an hour ago. A family member tells the nurse that her father seems different. The receiving unit is short-staffed and has not yet reviewed the transfer plan. Delaying the transfer may disrupt a process established to increase patient throughput and may be recorded as a failure to meet an operational target. Sending the patient too soon may preserve the appearance of efficiency. Yet doing so could shift unresolved clinical needs to the receiving unit, cause avoidable distress, and increase the likelihood of deterioration or return to the ICU.


Which choice represents good care?


The question exposes why the distinction between healthcare and care matters. The two are closely related, but they are not interchangeable.


Healthcare is an organized enterprise that includes hospitals, clinics, professionals, technologies, policies, payment structures, documentation, and workflows. A healthcare system must pursue many legitimate goals, all ostensibly in service of the patient. The Institute of Medicine’s influential report Crossing the Quality Chasm described healthcare as needing to be safe, effective, patient-centered, timely, efficient, and equitable. A focus on these aims has helped institutions prevent harm, reduce delay, standardize effective treatment, and identify disparities.


Care is different. Care is the practice of recognizing what another person needs, accepting responsibility for responding, acting with competence, and remaining attentive to how that person responds. This understanding draws on political theorist Joan Tronto’s account of care as a practice requiring attentiveness (caring about), responsibility (taking care of), competence (care-giving), and responsiveness (responding to the care receiver).


These four components are not merely compassionate additions to technical work. They are part of what makes clinical work care. In the vignette above, attentiveness is required to notice that the patient is less alert. Responsibility matters when someone must decide who will act on the concern. Competence includes the knowledge and judgment needed to determine whether the change is significant. Responsiveness requires adjusting the plan when the patient’s situation no longer fits the expected course.


The distinction matters because a healthcare process can succeed on its own terms while making care more difficult.


A discharge initiative can be a valid effort to reduce intensive care unit and hospital lengths of stay and healthcare costs. Yet if discharge time becomes the overriding objective, a patient’s changing needs may be treated as obstacles to the process. Similarly, a clinical alert can identify deterioration accurately while drawing attention away from information that does not appear on the screen. A documentation system can improve completeness while fragmenting conversation and limiting the time available to understand what concerns a patient. A staffing model can meet formal requirements while distributing responsibility so diffusely that no one is sure who should respond when the situation changes.


In each case, the policy, technology, or workflow may be functioning as designed. The problem is not necessarily that the intervention is unsafe, ineffective, or poorly implemented. The problem may be that success is being evaluated without examining how the intervention has changed the conditions under which care is practiced.
This is not an argument against safety, quality, efficiency, or productivity. Safety is an essential part of competent care. Timeliness can be deeply responsive when prompt action relieves suffering or prevents harmful delay. Efficiency can free resources for patients who need them. Productivity matters to institutions that must remain financially sustainable and serve many people.


These goals become ethically troublesome when they are treated as evidence that care has occurred, or when they begin to define what care requires. An efficient patient transfer is not necessarily an attentive transfer. A completed checklist does not establish who is responsible, and for what. Technical success does not guarantee that the patient’s experience, concerns, or changing condition have been understood. Processes can be standardized in good faith without being sufficiently responsive to circumstances that standardization cannot anticipate.


Quality frameworks often recognize patient-centeredness, communication, and outcomes that matter to patients. Even so, no framework or set of measures can fully substitute for the practice of care. While quality measures identify what an institution believes—or in some cases is required to consider—is important and is able to count, care is often revealed in the need to interpret, question, pause, coordinate, or depart from an expected pathway because this patient, at this moment, requires something different.


When healthcare and care are treated as synonyms, organizational goals can become moral stand-ins for care. Throughput can stand in for responsiveness, compliance for responsibility, task completion for competence, and available data can determine what deserves attention. The system may then optimize these indicators while weakening the practice they were meant to support.


We need a clearer way to talk about the relationship between the two. Healthcare is the institutional arrangement within which care is organized and delivered. Its policies, technologies, staffing models, financial incentives, and performance measures shape the conditions under which people try to care for one another. These arrangements should be judged not only by whether they achieve their stated operational goals, but also by whether they help clinicians, patients, and families notice what matters, understand who is responsible, act competently, and respond when needs change.


That additional judgment will not always produce a simple answer. Delaying the transfer to the intensive care unit may affect another patient in need of a bed. Continuing with the transfer may also be reasonable after the concern is assessed. Care does not remove competing obligations or operational constraints. It requires that those constraints not settle the question before the patient’s situation has been adequately understood.


The distinction between healthcare and care is therefore not semantic. Care gives healthcare’s many legitimate aims a direction. Safety, quality, efficiency, technology, and organizational performance should support the practice of care rather than become substitutes for it.


Before calling a new policy, workflow, or technology an improvement in care, we should ask a further question: What does this change in practice conditions make easier or harder for people who must notice, take responsibility, act competently, and respond to the patient in front of them?


The work ahead is to make the conditions required for care visible and to ensure that healthcare remains organized around the practice it exists to support.

Tjörvi E. Perry, MD, MMSc, MBE, is a cardiac anesthesiologist and bioethicist.

Kathleen A. Harder, PhD, is an experimental cognitive psychologist.

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