Genetics, Research Ethics
Even with New EMR Release from ‘All of US,’ the United States Still Hasn’...
The All of Us research biobank recently announced a massive new data release – making it the largest health database in ...
Subject: Genetics
Editorial-AJOB, Ethics, Genetics, Health Regulation & Law, Policy, Public Health
Whose Values Define Value? Procedural Justice and the Personal Utility of Clinical Genomic...
This editorial appears in the May Issue of the American Journal of Bioethics The recent increases in the number of perso...
Editorial-AJOB, Genetics
Hippocratic Beneficence: The Ethical Grounding of Remedial Germline Editing
This editorial appears in the March 2025 issue of the American Journal of Bioethics. Heritable monogenic mala...
Ethics, Genetics, Race, Research Ethics
Perpetuating Eugenic Notions of Intelligence Through Novel Uses of Neurotechnology
Neuroimaging technologies such as the electroencephalogram (EEG) have been utilized to predict intelligence quotients (I...
Disability Studies, Genetics
Disability and Ethical Frontiers in Genetics and Genomics Research
Neglecting to include the needs of disabled people holds the potential to perpetuate discrimination against disabled com...
Genetics, Race
CERA Statement Against the Weaponization of Genetic Research
The shooting in Buffalo that resulted in the deaths of ten Black Americans is one of many in a series of tragedies that ...
Clinical Trials & Studies, Genetics, Research Ethics, Science
Share Your ELSI Research Tools
by Deanne Dunbar Dolan, PhD I write today to encourage ELSI scholars to deposit their published and unpublished res...
Children/Adolescents, Education, Genetics, Health Disparities, Social Justice
Why should we care about social and behavioral genomics?
By Daphne O. Martschenko, PhD, Lucas J. Matthews, PhD, Maya Sabatello, LLB, PhD Only a couple of decades ago, extensive ...
Editorial-AJOB, Ethics, Genetics
Preparing For The Next Generation of Ethical Challenges Concerning Heritable Human Genome ...
by Robert Klitzman, MD This editorial can be found in the latest issue of American Journal of Bioethics. https://www.tan...
Editorial-AJOB, Genetics
Upstream Ethical Mapping of Germline Genome Editing
This piece appears as an editorial in the August 2020 issue of The American Journal of Bioethics. You can read this piec...
BioethicsTV, Clinical Trials & Studies, End of Life Care, Genetics, Informed Consent
BioethicsTV (Feb. 24-28): #TheGoodDoctor #NewAmsterdam #ChicagoMed
by Craig Klugman, Ph.D. The Good Doctor (Season 3; Episode 16):Who consents when there is more than one personality; New...
Genetics, Health Regulation & Law, OPC
Patenting foundational technologies – recent developments in the CRISPR patent struggle
by Julian Cockbain[1] and Sigrid Sterckx[2] In a target article in this Journal in 2018, for which we were two of the co...