The Genetic Privacy Act and Commentary is the Final Report of a project entitled "Guidelines for Protecting Privacy of Information Stored in Genetic Data Banks" which was funded by the Ethical, Legal & Social Implications of the Human Genome Project.
Genetic Privacy Act and Commentary
Related posts
Poverty, Puritanism, and Popularity: The Resurgence of Eugenics through Viral Content Online
It began with a video of a pregnant mother narrating over a sped-up video of her rearranging kitchen furniture. She explained that her family of six was becoming seven and were all living in a one-bedroom apartment. She talked about the difficulties and how all of their children sleep in the living room and kitchen […]
Have We Finally Amused Ourselves to Death? The Triumph of Entertainment Values over Civic Virtues
In early 2016, I wrote a blog for Bioethics Today (formerly bioethics.net) that examined the rise of the Trump movement as a testament to the work of cultural critic Neil Postman. Specifically, Postman’s work Amusing Ourselves to Death: Public Discourse in the Age of Show Business predicted that our screen culture, with its obsession with superficial entertainment, […]
Insulin Price Controls, Who Falls Through the Gaps?
In the United States, 6 million people take insulin to control their type 2 diabetes. In recent years, the high price of insulin has been widely covered in the media. Disturbing stories of insulin rationing and patient deaths have been widely reported. A Yale study from 2018 found that 1 in 4 patients with diabetes […]
When Worlds Collide: The Problem of Health Inequities and Anti-Immigrant Politics
This editorial appears in the November 2024 issue of the American Journal of Bioethics Seeing language barriers as a significant threat to the health of patients calls for a response from health-care institutions and providers at all levels. Failing to respond allows an arbitrary social circumstance to deny full opportunity for a healthy life to particular persons. […]