AJOB Empirical Bioethics Volume 7, Number 2
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Even with New EMR Release from ‘All of US,’ the United States Still Hasn’t Solved its Genetic Data Diversity Problem
The All of Us research biobank recently announced a massive new data release – making it the largest health database in the world that allows researchers to access both donated genomic information as well as participants’ electronic medical records (EMRs). That combination can allow researchers to associate the genomic variations that we all have with […]
From Aquaphor to Alcohol: Can Overreliance on AI Lead to a Decline in Human Connection Within Healthcare?
When the doctor’s note from my daughter’s wellness visit to the hospital was posted on our patient portal, I discovered that the doctor’s AI notetaker had erroneously entered ‘alcohol’ as the ointment applied to a dry skin patch on my daughter’s face, when in fact, my response to the doctor’s question of what I applied […]
Holy Immunity: The Ministerial Exception and Teacher Discrimination
Kristen Biel had breast cancer and her Catholic school refused to renew her contract. Miriam Grussgot had a brain tumor and her Jewish school fired her. Both wished to seek recourse in the courts for alleged discrimination. Just a month ago, a Catholic school refused to renew the contract of a teacher who uses a […]
Beyond Transparency: Why Bioethics Must Move Toward Public Enrolment
Bioethicists have become very good at arguing for transparency. We encourage institutions to disclose conflicts of interest, explain difficult decisions, communicate uncertainty, and justify ethical trade-offs. These are all necessary, even essential — yet they are not enough. Transparency helps explain decisions. It does not, by itself, create the relationships required for public trust. Bioethics […]