The Genetic Privacy Act and Commentary is the Final Report of a project entitled "Guidelines for Protecting Privacy of Information Stored in Genetic Data Banks" which was funded by the Ethical, Legal & Social Implications of the Human Genome Project.
Genetic Privacy Act and Commentary
Related posts
Brain Organoids: Reverse Zombies?
Imagine using stem cells to create a fragment of a human brain in a petri dish. It has no eyes to see, no mouth to speak, and no body to move. It’s just a part of a brain, designed to do one small aspect of what a brain does, like respond to stimulation or generate […]
From Epistemic Injustice to Epistemic Imagination: Reframing Older Age, Disability, and Dying in Bioethics
This editorial appears in the October 2026 Issue of the American Journal of Bioethics In Ageism, Ableism, and Epistemic Injustice: Tracing Absence and Construction in Bioethics and Public Health, Langmann and Goldberg demonstrate how ageism and ableism operate as epistemic forces that shape whose knowledge counts in bioethics and public health. Older adults and people […]
Individualizing Informed Consent: For Whom, and How Far?
This editorial appears in the October 2026 Issue of the American Journal of Bioethics In 2018, the U.S. federal guidelines were updated to require the reasonable person standard during informed consent in research settings. According to the standard, researchers must disclose to participants the risks, benefits, and purpose of the research that an “average person” […]
The End of an Absolute: Jehovah’s Witnesses Reconsider Blood Product TransfusionsBlood Products
The September 18th, 2026, announcement from the Governing Body of Jehovah’s Witnesses (JW) is one of the most consequential changes to the religion’s medical doctrine in modern times. For decades, JWs were told to refuse transfusion of blood and its four principal components (red cells, white cells, plasma, and platelets). That’s no longer the case. […]