The Genetics and Public Policy Center was created to respond to the challenges and opportunities of genetic medicine and its potential to transform global public health.
Genetics & Public Policy Center
Related posts
Even with New EMR Release from ‘All of US,’ the United States Still Hasn’t Solved its Genetic Data Diversity Problem
The All of Us research biobank recently announced a massive new data release – making it the largest health database in the world that allows researchers to access both donated genomic information as well as participants’ electronic medical records (EMRs). That combination can allow researchers to associate the genomic variations that we all have with […]
Mapping the Moral Brain: Probing the Architecture of Ethical Decision-Making with TMS
There is growing research interest in the prevalence of moral injury – a profound psychological harm caused by judgments which deviate from what an individual or society views as “right” – among those who have been exposed to trauma, such as veterans and survivors of abuse. However, what makes a judgment “moral”? Philosophers have long […]
Centering Our Social World in Planetary Health Research Ethics
This editorial appears in the June Issue of the American Journal of Bioethics Planetary ethics, or examining the moral relationship between humans and the physical world, is a growing field of inquiry related to the broader discipline of environmental ethics. Essentially, more people interested in the health of our planet and the negative impact humans […]
Can Researchers Experience Moral Distress?
In the context of healthcare, moral distress has traditionally described the emotional and psychological distress healthcare providers experience when they are prevented from acting in the way they feel is most ethical or just. Their moral agency is typically constrained by institutional policies, pressures, or a lack of resources. NPR, for instance, recently reported on […]